Friday, May 7, 2010

Me, ME, and Vitamin D


I have been incapacitated for weeks. A friend of mine, artist Teresa Mill, came to visit me. She brought freshly cut roses from the garden. They smell heavenly! Thank you, Teresa!

The past 2 weeks have been very painful for me. I have spent many hours at my doctors office, on 2 separate visits. The first visit was preceded by the worst body aches I have ever had. I was actually crying. I didn't have a fever, and there didn't seem to be one thing that was causing the all-over excruciating joint, muscle and bone aches. My kidneys hurt, too. I had to be seen by nurse practitioner. He was very thorough, but he did say one of those things that make ME/CFS patient's blood pressure go sky high: "Sometimes we give pain patients anti-depressants and the pain just goes away." I said, "Look at my chart. I have been on nortryptaline (20 mgs a day) for 16 years! And I have tried them all!"
"True", he said, after reading the chart.
So he ordered many tests for things I've never heard of, and other things I've been tested for numerous times.
Three days after the Dr. visit, I discovered the culprit for the horrible body pains: vitamin D supplements. I stopped taking them because I felt so terribly sick. Three days later, most of the pain was gone. (Last month I was found to have a severe vitamin D deficiency with a level of 16. This is in spite of my diet containing foods with a daily intake of 100% of vitamin D. )
I had to go back to my Dr.'s. It turns out that because my body can't absorb the D, taking the supplements makes me very sick. It's part of a mal-absorption syndrome. My Dr. explained that my bones are at risk, and need D asap. Normally, your body absorbs D through sunlight. Due to having zero thyroid function, going out in direct sunlight causes me to have abscesses on the skin. (Did I mention I have very pale skin with no chance of tanning?)
The other tests showed that my pernicious anemia is alive and well. No wonder I feel sad and blue. I've also got a virus that attacks the vocal chords. I can't talk. I was told this will take 6-8 weeks to run it's course. Chances are, I was exposed to it at the clinic. Oh Joy!!
Now comes the task of experimenting with different supplements and food combinations. Fortunately, my husband works for a health food store. Oh- and he is a musician who plays the Blues... and plays it like he means it.

1 comment:

  1. D ~ Have you thoroughly investigated all vitamin D supplements? I take a D3 that truly seems to be of superior quality. It's by Metagenics. Hope that helps? I have to order it through a distributor online, but she is a PWC, and keeps her prices as low as possible. And GAWD no, I don't profit in any way from sharing this info!

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